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Engaging Australia’s First Peoples in the development of ethics and protocols for a family-based microbiome study and social health history project

The aim of this project funded by the Lowitja Institute is to establish Aboriginal and Torres Strait Islander engagement strategies, communication tools and ethics for a future First Peoples microbiome study and social health history project. Using in-depth interviews the project aims to identify First Peoples protocols for the ethical collection, storage and preservation of microbe sampling and epigenetic analysis related to multiple generations of First Peoples families.

The project will also examine and review the national and international frameworks of genomic research institutes that are currently engaging First Peoples senior knowledge holders and families in the governance of bioscientific cultural repositories. The key objective of the review is to map First Peoples leadership in describing, and responding to, historically collected biological samples and genetic data and to define the ways in which contemporary social practices and cultural knowledge might support a culturally led project with long term benefits to the health and wellbeing of First Peoples families.

Aboriginal and Torres Strait Islander team members will lead and engage with all aspects of this project.

Project team
  • Dr Sharon Huebner
  • Professor Kerry Arabena
Project partners
  • Professor Alex Brown, South Australia Health and Medical Research Institute (SAHMRI)
  • Professor Len Harrison, Walter & Eliza Hall Institute of Medical Research (WEHI)
  • Professor Stuart Kinner, Murdoch Children's Research Institute (MCRI)
  • Professor Simon Easteal, National Centre for Indigenous Genomics (NCIG), ANU
  • Dr Ray Lovett, National Centre for Epidemiology and Population Health (NCEPH), ANU.

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Created: 01 June 2018 - Updated: 14 December 2018