October 2013, Melbourne
Approximately 30 people attended the Lowitja Institute and Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS) roundtable on Aboriginal and Torres Strait Islander Health Data Linkage, in Melbourne, on 31 October 2013. The roundtable was attended by a diverse range of organisations from across the country with an interest in data and data linkage, including the Aboriginal Community Controlled sector, government agencies, health service providers/clinics, research institutes and non-government organisations.
The purpose of the roundtable was to:
- bring together researchers, community controlled services and government agencies involved in data collection, analysis and usage, data management and data integration and linkage
- provide an overview of data gaps and barriers to good health data and linkage concerning Aboriginal and Torres Strait people
- identify opportunities for closing data gaps through data linkage strategies, including the linking of registry and administrative databases across jurisdictions
- improve data linkages at the regional level establish better communication/collaboration across the different health systems to improve data linkage capacity
- identify potential interventions based on the sharing of ideas on data and data linkages share information about current data linkage initiatives in different States around Aboriginal and Torres Strait Islander health data
- discuss ownership and use of data and their linkages.
Related resources:
- Aboriginal and Torres Strait Islander Health Data Linkage Roundtable Report, The Lowitja Institute 2014
- The Lowitja Institute Data Linkage Roundtable: Background Document, Dr Ray Lovett 2013, Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS)
- Presentation: Data linkage concerning Aboriginal and Torres Strait Islander people: An overview, Dr Ray Lovett, AIATSIS
- Presentation: Australian Bureau of Statistics: Current data linkage activities – What the future might hold, Julie Nankervis 2013, Director, National Centre for Aboriginal and Torres Strait Islander Statistics
- Presentation: Data ownership and use – Research perspective, Associate Professor Margaret Kelaher, The University of Melbourne
- Presentation: Data ownership and use – Community control sector perspective, Professor Ngiare Brown, National Aboriginal Community Controlled Health Organisation (NACCHO)
- Couplage des données sans frontier or Data linkage without borders, Associate Professor Jane Freemantle, Onemda VicHealth Koori Health Unit, The University of Melbourne
- Presentation: Access to data for enhanced mortality database project: Issues and problems by Dr Fadwa Al-Yaman (Australian Institute of Health and Welfare, AIHW), Dr Len Smith (The Australian National University, ANU), and Tetteh Dugbaza (AIHW)
- Presentation: Opportunities for large scale collaborative research in Aboriginal health through improved data linkage capacity and integration, Professor Emily Banks, National Centre for Epidemiology and Population Health, The Australian National University
- Australian Bureau of Statistics Data Linkage Program, ABS 2013
- Public Support for Data-based Research To Improve Health, A discussion paper based on the proceedings of a Menzies Foundation Workshop 16 August 2013, Menzies Foundation 2013