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The National Disability Insurance Scheme (NDIS) represents a major change in the way the services and supports for people with disability are funded. It presents both tremendous opportunity yet significant challenges.
Ensuring that Aboriginal and Torres Strait Islander people receive the same care as other Australians is an important human rights obligation. This project will improve the ability of the NDIS to achieve this.
At this stage, with the exception of an evaluation conducted in Barkly, very little is known about the roll-out of the NDIS to Aboriginal and Torres Strait Islander people. Aboriginal and Torres Strait Islander people younger than 65 years are nearly two and half times more likely to be disabled than other Australians and are likely under-represented in this statistic.1 A 2012 study indicated that around 26,000 Indigenous Australians aged 15 years and over (7.9%) had severe or profound core activity limitations and nearly half (49.8%) had a long term disability or health condition.1 The First Peoples Disability Network (FPDN) estimate that the current number of Aboriginal and Torres Strait Islander people with disabilities is around 60,000.2
This project will examine:
Recognition that Aboriginal and Torres Strait Islander people with disabilities are not well served by mainstream services has led to strong advocacy and the development of culturally competent service models by the community controlled and NGO sector. This project is a collaboration of 3 such organisations; Machado Joseph Disease Foundation (MJDF), Synapse and First Peoples Disability Network and the University of Melbourne.
The project will take a co-design approach to developing a study of the roll out of the NDIS for Aboriginal and Torres Strait Islander people. Co-design, or experience-based co-design, is not only a way to actively involve consumers in the design, delivery and/or evaluation of services but also enables the design of systems where consumer and carer experiences are central.3 Our approach to the project will bring together expertise from Aboriginal and Torres Strait Islander organisations working to provide services to people with disabilities, with researchers and policy makers. The approach to design and data collection will support Aboriginal and Torres Strait Islander leadership, optimise existing data and knowledge, and develop local research capacity among Aboriginal and Torres Strait Islander people. It will bring together community, researchers, providers, policy makers and NDIA staff and develop an evidence informed approach to improving the NDIS and developing a workforce to support it. The project will involve four phases:
It is expected that the project will identify strengths and weaknesses of the NDIS implementation. It will identify promising strategies to improve the ways the NDIA works with Aboriginal and Torres Strait Islander people and organisations.
The University of Melbourne