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Developing a quality of life tool for the use in Aboriginal and Torres Strait Islander children with chronic disease

Master thesis by Jane Pooley – Queensland University of Technology

Thesis

Jane was inspired to commence a Master of Applied Science in Indigenous health when working with Queensland Children’s Medical Research Institute (QCMRI) as a research nurse. Her research is focussed on the development a quality of life tool for Aboriginal and Torres Strait Islander people.

The primary objective of the study is to utilise the information gathered from the yarning sessions with groups and individuals to assist in the development of a culturally appropriate tool for measuring the quality of life in Aboriginal and Torres Strait Islander children with chronic diseases.

This study seeks to guide and inform the development of future health care services, interventions and research by raising awareness and understanding about the health and wellbeing of Aboriginal and Torres Strait Islander children and the impact of illnesses and general ill-health on their overall quality of life.

Background

Jane is an Aboriginal registered nurse with cultural and family links to Southern Tasmania. She was born in Kancoona South, Victoria, moved to Tasmania as a toddler and grew up near Hobart. Jane was raised by her mother who she remembers actively wove cultural stories and beliefs into her growing up. After completing school, Jane moved to Melbourne to study a Bachelor of Nursing at Deakin University and, in her graduate year, was nominated for nurse of the year by Western Health. Jane then moved into paediatric intensive care, a role she thoroughly loved and lead to her specialising in paediatrics. Within the health sector she has worked as a pathology collector, a manager of a health facility, and a research nurse. She is passionate about health education and related issues for Aboriginal people and committed to contributing to closing the gap in health between Aboriginal and Torres Strait Islander people and non-Indigenous Australians. A student again, Jane is raising her young daughter with her husband and now calls Brisbane home.

Created: 30 June 2015 - Updated: 28 January 2016