Chapter 9: Managing Data

Overview of Contents

• Data ownership and intellectual property
  Intellectual property in Australian law
  Indigenous cultural and intellectual property rights
  Managing intellectual property in Indigenous health research

• Informed consent
  Informed consent in community settings
  Developing and using informed consent resources
  Case story – Making a DVD for informed consent processes
  Case story – Training community workers to deliver local informed consent materials

• Confidentiality

• Collecting data in community settings
  Practical issues in community settings
  Adapting data collection methods to local circumstances
  Issues for Indigenous researchers
  Working with an Indigenous language interpreter
  Protecting records of Indigenous knowledge
  Working safely with culturally restricted information

• Analysing and interpreting data
  Planning a group session to analyse or interpret data
  The importance of local knowledge
  Interpreting data from collections

• Key messages for researchers

Excerpt from Chapter 9

Methods for collecting and analysing data are included in all courses that teach research skills. This chapter identifies specific data issues in Indigenous health research that have not been raised in earlier chapters. It explains legal and ethical obligations in data collection. It offers tips for good practice on-the-ground when managing intellectual property and confidentiality, using informed consent processes, working with interpreters, and collecting and interpreting data.

To read the full chapter, purchase a copy of Researching Indigenous Health: A Practical Guide for Researchers.

Also see Managing and Interpreting Data resources for more information.